To live will be an awfully BIG adventure
-J.M. Barrie, Peter Pan 

BE APART OF THE CURE
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No matter how big or how small a donation is, every single penny counts!  

The mission is simple: To raise awareness and funds for Sanfilippo Syndrome so we can get more research, trials, and treatments up and running and find a Cure for these children!

With your help, we can give not only Carter but so many other children a chance at life!

All donations are TAX-DEDUCTABLE and go to the Cure Sanfilippo Foundation a 501 c3 Non-profit.​
 
IMAGINE
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Imagine being told your child has a terminal disease and there is no cure.  That is the reality every Sanfilippo Family faces. 

The doctors best describe it as a child's version of alzheimer’s.

  They let you know you are lucky if your child makes it into their mid to late teens.

Until that moment, you never heard of this monstrous disease and yet, it has known you and has been harming your child since before they were even born.  
 
EDUCATE
   
Everyday a new child and family is diagnosed with Sanfilippo Syndrome.  

Many times Sanfilippo syndrome is misdiagnosed as autism.

We are in a race against time.  With each passing day, our children are a day closer to loosing major skills, and a day closer to their untimely deaths.  

To learn more about Sanfilippo Syndrome please visit
     curesff.org
ABOUT US
We are a team apart of the Cure Sanfilippo Foundation {CureSFF}.  We host different fundraiser, events, and online campaigns to help raise awareness and funds for Sanfilippo Syndrome.   

All the money we raise goes towards getting more reasearch, trials, and treatements up and running so we can find a CURE for Sanfilippo Syndome.  
We are Team Carter's Challenge.  We are volunteers apart of the Cure Sanfilippo Foundation.  Our goal is to find a cure for Sanfilippo Syndrome.  

We plan to do this by raising as much awareness as possible and are hopeful that we will get this disease known on a national level. Anything is possible with teamwork and with your help, we could make Sanfilippo a disease of the past! 
WHAT WE DO
WHO WE ARE
VIDEOS
  1. The Santa Clarita Valley Signal
    Parents Fight Toddler's terminal disease
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Our son Carter {aka C-Money} was diagnosed with Sanfilippo Syndrome type A in May 2016.  On top of this diagnosis C-Money also has chronic pancreatitis due to a rare CTRC gene mutation.  

Currently Carter is in the most intense special education classes in our district.  On top school and the therapy he receives there, C goes to outside physical therapy, occupational therapy, speech, and horse therapy and additional eight times per week.  

To learn more about Carter's story, please visit the About C section here, and follow him on social media.  Also, you can learn more at  curesff.org